Holidays

Anyone who knows me knows I never go on holiday. Two reasons really; since becoming a home owner I never felt I could truly afford a holiday and I have always been so happy in the homes I’ve lived in since, that I didn’t feel the need to go away and potentially to somewhere less comfortable than my own home.  

All that changed at the end of July this year. For some unknown reason (at that time) I suddenly decided to go away on holiday!  With the help of my sister I booked to go to St Andrews for a week at the start of August.  The holiday house wasn’t quite what was promised on the website but it was adequate. St Andrews on the other hand was everything and more it promised to be…and everything various people had told me it was. Certainly it took me a few days to find my way around the part of the town I was staying in (being severely sight impaired and having next to no visuo-spatial awareness doesn’t make navigating new environment easy) but I fell in love with the town.  Beautiful beaches for my guide dog to play on, Imageimmaculate streets with many lovely floral displays and every kind of shop you could ever wish for. It was one of the best, if not the best, holiday I have ever had.

But why did I suddenly decide to change a 13 year habit and go on holiday? Before I went to St Andrews I thought it was because this summer had been so nice but living in a flat I felt a bit robbed of the sunshine and garden/outdoors time many others had experienced (as I’m sure did my guide dog).  So I rationalised that going to a seaside town to a holiday house with a garden would balance the scales a bit.  A couple of days into my holiday and I began to think that wasn’t the reason after all. When I came home I knew the reason for certain that I’d gone on holiday. 

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Snowdrops

In the winter of 2002/2003 when I was really quite unwell and wondering if I’d ever get any better, I saw a solitary snowdrop Imageon my walk around Linlithgow loch and from then on knew that even when things feel at their most bleak, there is always hope.  A while after my encounter with my little snowdrop I volunteered with a local Rainbows troupe.  The girls were asked to give me a name. With no prompting from the Girl Guide leaders or myself they came up with Snowdrop!  I go and visit my snowdrop ever winter.

Here’s a poem I found recently about snowdrops.

Snowdrops

All around me is a barren wasteland,

Skeletal trees wave their claws menancingly,

The earth is hard and ungiving,

It might seem hopeless….

But for the snowdrops.

 

Through the frost and snow,

They grow.

And blossom like little angels,

Phoenixes in plant form,

But pure white and angelic.

February’s fair maidens,

Candlemass bells.

 

And though Winter’s brisk winds may blow,

The snowdrops will stand their ground.

And though in later months they may drop and die,

Spring and Summer will pass, and leaves again will turn to rust,

And though the ground may become barren again,

Through the frost will come

The snowdrops once more.

 

Found on the internet – wattpad http://www.wattpad.com/story/1049723-snowdrops  Accessed 29/08/13

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Moving on

One of the first big changes my eye condition brought with it (after losing my driving licence) was the realisation that I could no longer stay in my then current home.  Despite it being possibly the perfect house to live in as my sight deteriorated (a bungalow, great external lighting and a bus stop close by) it was nowhere near any of the services that I needed (shops, hairdressers etc etc).  This wasn’t a problem when I move in as I could drive then, but with the near non-existent bus service not only was getting to and from work adding an extra 4 hours to my working day, but I was becoming ever more socially isolated.  Oddly, when I bought “Taigh Beag” (named by me – Gaelic for Little Home) I knew it wasn’t going to be my forever home despite loving everything about it.  Image

One of the things I both like and dislike about myself is how practical a person I am.  I knew the only solution to my then current situation was to move house but I didn’t want to.  At that point in time, RP had taken my driving licence away from me (something I was immensely proud of myself to have achieved at first sitting and when I was predicted not only not to pass at first attempt, but not to ever pass) and the career change I was so near to completing.  Losing my home seemed like the final insult.  It should be me who decided when and if I moved house, not a decision forced on me at the whim of a faulty gene.  

As ever with me, practicality won out and I put my house up for sale.  It took a year to sell.  So desperate was I to move that at one point I consulted a psychic to see if they could tell me why it wasn’t selling despite the positive viewings and feedback.  All she could come up with was ‘there’s something blocking the sale’ (Really? Tell me something I hadn’t worked out for myself!) with her having a vision of my front door.  I went home that day and spent hours in the front garden tarting everything up….but still no sale until the day I knew it wasn’t possible for me to feel more desperate or isolated than I was…and then finally my estate agent called  – unfortunately it was with a ridiculous offer but I grabbed it with both hands.  I now believe that it was me blocking my own sale of the house by not really wanting to move – it was only when I felt forced to give up on my home and accept my situation that an offer finally came in.  So I could add taking a significant financial hit to the growing list of things RP was progressively stealing from me!

Moving to the town I live in now was absolutely the right decision as I’m now much closer to public transport and services but I often think of my Little Home and ironically it would have also been perfect for my guide dog with its secure garden.  Image

Since diagnosis I’ve maintained that it’s not just your sight you lose when you get a diagnosis like I did….in my case I lost a home, a financial investment, a career and my independence.  I’m lucky to have a great view from my flat and in fact that was what sold the flat to me.  I take time to look at it everyday as I know some day in the future that will be taken from me too.

My diagnosis has brought some positives….first and foremost my beautiful guide dog who will always be so much more to me than a mobility aid Imageand also the friends I have gained directly and indirectly from my association with Guide Dogs.

And my beautiful guide dog has helped me move on in lots of ways, ways I never expected nor was prepared for.

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Nobody told me

ImageWhen you apply for a guide dog the Guide Dog rehabilitation staff spend a considerable amount of time telling you all about the various responsibilities you will be taking on for the care and welfare of a dog and of a working dog. They tell you about poo, vomit, common illnesses, flea treatments, worming, grooming, feeding, the house ‘rules’ for a working dog, how tiring most people find training, the fact that many members of the public can find an assistance dog a thing of wonder and something to distract to the nth degree. They warn you, warn you again and then warn you yet again throughout the application and matching processes that they reserve the right to withdraw the dog from your care at any time, if need be with no prior notice if they believe you are not adhering to the various rules and regulations and meeting the needs of the dog. They tell you of occasions when they have withdrawn dogs because of welfare issues and how they have done so for very small breaches of these. I don’t think I could have been the only applicant left wondering whether I could cope with all of this….did I have the where-with-all to take on this responsibility and to live up to the role of being a guide dog owner? 

Those of you who know me will know by now that I did have the where-with-all (well, I hope I do!) and was happily matched with my guide dog, Waffle, a little over a year ago.

But what I want to know is….why do Guide Dogs not warn you that this rather large bundle of fur will come into your life and knock you head over heels in love with it? No one tells you about the amazing partnership that will quickly develop and the trust both human and dog will develop in one another. Your big bundle of fur will bring such happiness into your life – countless smiles every single day both in what they do to keep you safe and at play time when they show you their own personality and demonstrate how much fun it is to have a dog in your life. The fact that you will be instantly awake when your precious dog comes to the side of your bed to be let out to spend, no matter what time of the day or night it is. That you will happily endure wind, rain, hail, snow, ice, gales and thunder to exercise your dog each day. You will find immense fun in drying off a soaking wet dog and a satisfaction in cleaning your floor and washing endless towels so they are ready for the next wet day. You will gladly have your heart in your mouth when you take them for a free run because you need to manage for a short time without them at your side but know they are having fun and having time just to be a dog and gallop around the park, sniff at everything they find interesting, chew lots of sticks, dip their paws in any available water and roll in some pretty smelly stuff. And that each and every day, sometimes more than once a day, you will send a silent prayer of thanks to the puppy walker who solely out of the goodness of their heart raised your dog to be the amazing guide they become and endlessly feel indebted to knowing you can never hope to repay their kindness.

I guess one reason Guide Dogs focus on the responsibilities is so that you take applying for a dog, being matched with one, going through your training and taking over responsibility for the dog seriously and don’t underestimate the number of things you will need to learn, and quickly too.  And no one should underestimate any of this. Guide Dogs are there to help you learn and steer you through the many processes required in applying for and being matched with a guide dog – but at the end of the day, when the trainer goes home, you are the person responsible for the dog….and you will be held to account for how you are caring for the dog and working as a guide dog owner….and rightly so. 

That said, I’m still left reeling from the immense love I have for my dog, which continues to grow every day. Perhaps I was unprepared for this as I’ve not really had pets (a couple of hamsters and guinea pig aside) with which I could build such a bond. My love for Waffle is such that I am, oddly enough even to myself, grateful that I have an eye condition so I can experience all these things with her. 

Undoubtedly I wouldn’t have taken on the responsibility of a dog without knowing my sister was at my back should there be a crisis and I couldn’t care for Waffle – Waffle’s welfare and needs will always come before my own so I needed to be prepared in case the unthinkable and/or unexpected should happen. I’m very lucky that through the processes of becoming a guide dog owner my support system has grown and I now have others in my life who I know I could call upon to care for Waffle, with one friend in particular being a great support to both Waffle and me.

Perhaps it is a good thing nobody told me about the love that I would have for my guide dog as I might have worried endlessly that my heart wasn’t big enough to contain that love…happily, it turns out that it is!

[Picture description: the photograph shows Waffle lying on her left side with her head on her toy, Edward.]

 

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Trying something new

I thought I’d have a go at blogging, mainly because I’ve always been someone who spends a lot of time in my own head reflecting on my day, my life, the future, the universe…so okay you probably get the idea…which is all well and good until I want to get some sleep and then it’s not so good to be awake in the early hours of the morning reflecting, reflecting and reflecting some more just for good measure. So blogging seemed to be the way to go to sort through some of the detritus in my head and as much as I’m a nightmare technophobe, I’m open to new experiences so what the heck, I signed up!

I’ve also relatively recently been diagnosed with an eye condition which has meant significant changes to my life so I hope blogging will help me make sense of these changes as well as navigating them.

Come with me on my journey if you dare, but be warned….my head is often full of random thoughts with very little obvious link between them and few of them make sense even to me 😀

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Death by text

So can anyone tell me, nay reassure me, has anyone ever actually died from predictive text as I’m sure it will be the death of me! I love my little iPad mini, it can do amazing things quicker than a blink of the eye and with such aplomb, but really predictive text drives me nuts and reached a whole new level when trying to compose my first blog post. I tell myself I’ll grow to love it, we’ll maybe just appreciate it, and maybe even one day work out how to turn the damn thing off (case in point, took 3 attempts to type ‘damn thing off’!) but until that glorious day, I’ll hope my blood pressure can with stand the beating it is taking. 

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Trying something new

Well this is the third time I’ve tried to write and post this! It was going to explain a little behind the reasons why I decided to start a blog but has turned into a tortuous trial of posting something in my blog, not helped I’m sure by my rickety old laptop and my shiny new iPad which I’m still getting to grips with. So I’ll have another go at publishing this and come back to my reasons later *pulls out hair*. 

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“Without music,…

“Without music, life would be a mistake”. Friedrich Nietzsche

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